Archive for March 10, 2014

Help Save Shri Ghulam Nabi Azad

Posted: March 10, 2014 in Prose
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Shri Ghulam Nabi Azad: Save my 11 year son Arian #savearian #huntersyndrome
  • Petitioning Shri Ghulam Nabi Azad

Shri Ghulam Nabi Azad: Save my 11 year son Arian #savearian #huntersyndrome

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YOU
YOUR
FRIENDS
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THEIR
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10,000
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My 11 year old son Arian, has a rare disorder called the Hunter Syndrome. Estimates say that there are around 2000 people in the world who are affected by this disorder. We witness him struggling with his life everyday, battling this disorder.

This is one of the rarest disorders in the world. Most countries have subsidized treatment for this disease, but this is not the case in India.

Most patients die young because the treatment is very expensive. I don’t want to lose my son, that’s why I need your support.

The Indian Minister of Health and Family Welfare, Shri Ghulam Nabi Azad, has the power to change this and subsidise treatment for this rare disease.  

In order to live, Arian needs to undergo an enzyme replacement therapy developed by Shire, a US drug company. But the medicine is very expensive and impossible to find in India. If this treatment is subsidised in our country, anyone suffering from this disease will be able to afford it.

That’s why I started a petition on Change.org, asking Minister Ghulam Nabi Azad to subsidise the treatment for Hunter Syndrome patients in India, and save Arian’s life.

Over the years my son’s health has deteriorated drastically. We need as much support as we can get on our petition to ensure that Mr. Azaad doesn’t ignore our demand.

Please sign my petition and share it with your friends. 

Thanks in advance for your support

Sib Sankar Chowdhury

To:
Shri Ghulam Nabi Azad, Minister of Health and Family Welfare

RE: Medical support for Arian and subsidise medicine for Hunter Syndrome patients

Dear Sir,

As an Indian citizen I request you save this 11 year old boys life and subsidise medicine for Hunter Syndrome Patients.

Here’s a message from his father:

My 11 year old son Arian, has a rare disorder called the Hunter Syndrome. Estimates say that there are around 2000 people in the world who are…

Recent signatures

News

  1. Reached 50,000 signatures

  2. Elaprase: Worlds most expensive drug

    tamseel hussain

    Petition Organizer

    Elaprase Estimated annual cost: $375,000 Manufacturer: Shire This treatshttp://www.forbes.com/2010/02/19/expensive-drugs-cost-business-healthcare-rare-diseases_slide_3.html

  3. Reached 2,000 signatures

Supporters

SUHEL SETH

 218k followers

Abhijit Majumder

 40.8k followers

Ken Ghosh

 185k followers

Reasons for signing

. .

  • Dear Mr. Ghulam Nabi Azaad,

    Please take your share and pass this bill.

    prompt tax payer of India,

    Lokesh

  • shambhu prasad PATNA, INDIA

    govt. of india expend lot of public money on politicians-medical bill. Then a public like Arian should have right to get free medical treatment as a politician gets from govt. of india.

  • 1) The boy

    2) The relentless fight from Arian’s parents and his loving sister to save Arian.

    3) The passion of my colleagues at Edelman who have been trying their best to extend all support to Arian and his family

    4) To tell myself we can never lose hope no matter how hopeless any situation might seem.

  • So that the Minister does not ignore demands that are just and a young life is saved.

  • Government cannot be negligent of the healthcare of its fellow citizens. Globally NGOs and State Governments are spending millions to ensure proper health status of the fellow citizens and Indian Govt. lags behind in a big way. Such an effort to bring such grave issues forward and make our govt. more sensitive towards healthcare